About the Ring Chromosome 20 Foundation

Background

Cara Ford was only four years old when she began to have frequent and severe seizures. In a few months she regressed so badly that she could no longer talk, walk or eat unaided. Cara was diagnosed with refractory epilepsy and ring chromosome 20 syndrome, a rare chromosome disorder that for an unknown reason causes this devastating type of epilepsy which responds poorly to medication.

Stewart and Cara Ford

Given a bleak prognosis and with so little information on the syndrome available, Cara's father Stewart Ford decided in desperation to search for answers and took a long and difficult journey in search of medical treatment. After many disappointments, Cara was successfully treated in New York City at the Comprehensive Epilepsy Center of New York Presbyterian Hospital.

Stewart Ford established The Ring Chromosome 20 Foundation in the United Kingdom after finding medical help for his daughter's successful treatment. The charity was created so that other families would not have to endure the pain or the massive financial burden of treatment.

"I believe creating awareness of this syndrome around the world is vital to early diagnosis."Stewart Ford, 2007

The Ring Chromosome 20 Foundation operates and is completely supported by generous public donations. You can help make a critical difference in people's lives by choosing to give to our foundation. We are grateful for all donations, most of all we appreciate your interest in our cause. Help us make a difference by making a donation.